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Living with cancer or know someone who is?

We can help.

Through the signature red door of the Gilda’s Club Twin Cities clubhouse, you’ll find a welcoming, homelike environment with a professional program designed to meet the emotional and social needs of anyone dealing with cancer: men, women, teens and children.

Click here for information about the Gilda’s Club Twin Cities Support Program, Calendar and Membership.

For additional assistance call the Gilda’s Club Twin Cities office at 612-227-2147 or email program@gildasclubtwincities.org.

Resources

Resources in the Twin Cities

American Cancer Society – Mendota Heights, MN

The local American Cancer Society (ACS) in Mendota Heights, MN can provide information on many programs & services such as medical information, treatment decision tools, news updates, and support resources. You can also read about survivors’ experiences, find hope, and inspire others. Please contact Anna Ourada, Resource Specialist at ACA. Anna will put you in touch with other resources at ACS depending on needs.

Anna Ourada
American Cancer Society / Minnesota Cancer Alliance
2520 Pilot Knob Road, Suite 150
Mendota Heights, MN 55120-1158
Direct Line 651-255-8177
anna.ourada@cancer.org

Cancer Legal Line 

Cancer Legal Line’s mission is to alleviate the non-medical stressors faced by cancer patients and their loved ones by educating and providing them with cancer related legal information, resources and referrals. By educating, informing and empowering cancer patients and their families of their rights and the laws that pertain to them, they may better advocate for themselves from a position of strength and knowledge.

Firefly Sisterhood 

The mission of The Firefly Sisterhood is to foster one-to-one connections between women recently diagnosed with breast cancer and inspirational survivors. In reaching out to our communities, we’ve learned that when it comes to breast cancer: a) Emotional health and physical healing are linked b) Family and friend fatigue is real c) Connecting one-to-one with someone who has walked a similar path has a powerful effect.

Research by the American Cancer Society shows “treatment that deals with emotions and relationships (sometimes called psychosocial interventions) can help people with cancer feel more upbeat and have a better quality of life.” Strong personal relationships help reduce tension and anxiety in women with breast cancer, and may lower their risk of depression. To be matched with a guide, apply on the Firefly Sisterhood website.

Leukemia & Lymphoma Society 

The Leukemia & Lymphoma Society (LLS) is the world’s largest voluntary health organization dedicated to funding blood cancer research, education and patient services. LLS’s mission: Cure leukemia, lymphoma, Hodgkin’s disease and myeloma, and improve the quality of life of patients and their families. Since its founding in 1949, LLS has invested more than $600 million in research specifically targeting blood cancers.

Minnesota Angel Foundation

When cancer strikes, Angel Foundation provides two programs that help foster strength, resilience and hope. Both programs help adults living with cancer and their families gain a level of control over lives during a time of great uncertainty. Through their Financial Assistance program, adults in active cancer treatment receive emergency financial assistance for non-medical basic needs such as food, gas, utilities, rent or mortgage payments. Facing Cancer Together provides education and support to families facing a parental cancer diagnosis.  Call 612-627-9000 or email info@mnangel.org

Minnesota Ovarian Cancer Alliance 

The mission of the Minnesota Ovarian Cancer Alliance is to create an awareness regarding early warning signs that may be indicative of ovarian cancer, to create and promote resources for support, networking and education for diagnosed with ovarian cancer and their families, to unite and educate individuals, the medical community and organizations to achieve earlier diagnosis, better treatment and a cure for ovarian cancer and to advance ovarian cancer research toward earlier diagnosis, better treatment, and a cure.

Miracles of Mitch Foundation

An organization whose sole purpose is to improve the quality of life for children (and their families) who struggle daily with cancer. Steve, Becky and Melissa Chepokas have created a safety net and tangible resource for the various needs of the families of these special children. MOMF provides rapid assistance (typically checks are cut within 48 hours of grant approval) to families so that they can focus on their child and spend precious time together as a family. The Miracles of Mitch Foundation funds these programs: Personalized “Quality of Life” Grants; Minnesota Miracle Weekends; Home Rescue Team; MiracleKids Kamp; and Counseling and grief support and guidance. For more information call 952-361-9600

Mother Loss Support Group

A support group for adult women who have lost their mothers.  Please contact the Grief Support Line at 651-628-1752 and ask for the mother loss support group.

Pathways Minneapolis

Pathways serves individuals who seek healing for body, mind and spirit. A nonprofit organization created in 1988, they offer complementary healing services designed specifically for people affected by health crisis. Pathways provides a safe, warm, creative, and nurturing environment in which participants can examine the possibilities of healing through means other than conventional Western medical treatment.

Well Within in St. Paul

Well Within is a wellness resource center created to assist and encourage people in the midst of a health challenge who are seeking wellness and balance within their lives. This resource center in St. Paul is run by Mary Treacy-O’Keefe.

Click here to download a full list of resources

Frankly Speaking about Cancer

All of these titles are available at Gilda’s Club Twin Cities and on requested, will be shipped to you free of charge. To request any of these materials, call the Gilda’s Club office at 612-227-2147 or email info@gildasclubtwincities.org

Complete list of Frankly Speaking materials available to order from the Cancer Support Community

Advanced Breast Cancer, 3rd Edition
A book developed specifically for women diagnosed with advanced (metastatic) breast cancer that covers topics ranging from treatment and side effect information to quality of life issues.

Advanced Breast Cancer CD Rom

Breast Cancer Caregiver Guide
This book provides resources, tips and support for those caring for a loved one with breast cancer.

Cancer Vaccines: Exploring New Approaches to Treatment

Caregiver Guide, Spanish Edition
Developed in partnership with Nueva Vida, Inc., this Spanish-language booklet, De Cuidador a Cuidador (From Caregiver to Caregiver), provides much-needed information for caregivers of women with breast cancer.

Colorectal Cancer, 3rd Edition
A comprehensive publication packed with useful tips on managing a colorectal cancer diagnosis including treatment decision making, side effect management and social and emotional considerations.

Coping with the Cost of Care
A practical guide to navigating the complex challenges of managing the expenses associated with the cost of cancer care.

Frankly Speaking About Cancer Treatment and Side Effects
An educational booklet and personal journal combination designed to help people understand and manage the physical side effects from cancer treatment, as well as the emotional burden.

Frankly Speaking About New Discoveries

Lung Cancer
A comprehensive book that empowers people affected by lung cancer with information on treatment decision-making, side effects management, and improving quality of life during and after diagnosis.

Melanoma
A book that provides readers with insight into managing a melanoma diagnosis, making treatment decisions and coping with the emotional and practical obstacles people face after diagnosed with the disease.

Open to Options Cancer Clinic Trials

Spotlight on Breast Reconstruction
A patient empowerment book that streamlines information about breast reconstruction and provides useful tools to help women speak openly with their physicians.

Spotlight on Liver Cancer
A spotlight booklet that presents an in-depth look into diagnosing, treating, and living with liver cancer.

Spotlight on New Discoveries
A spotlight booklet that discusses the most current innovations occurring in oncology including the newest cancer therapies available, treatments that are still being tested in clinical trials, and information on the emotional and psychological impact of cancer.

Support from a Distance
A caregiver empowerment booklet for people who wish to help a loved one with cancer when they live apart. It offers practical guidance, helpful care-management tools and resources for long-distance caregivers.

Ten Tips for Caregivers
A caregiver empowerment booklet for anyone caring for someone with cancer. It shares information about how to find additional support, information, balance, and hope. It also highlights inspirational true stories from around the country.

Bone Marrow Transplants & Donors

Blood and Marrow Transplant Information Network

Patient-friendly handbooks and a quarterly newsletter about transplantation. Links patients with survivors who can provide emotional support. Maintains an online Directory of Transplant Centers in the US and Canada, an online Directory of Drugs used during transplant, and an online Resource Directory. Offers attorney referrals for patients who have insurance disputes. Comprehensive website.

(888) 597-7674
help@bmtinfonet.org

Blood and Marrow Transplant Resources
BMT resources offer patients having a bone marrow transplant (BMT) or peripheral blood stem cell transplant (PBSCT) access to an enormous amount of information about these procedures. You can learn everything you need to know to sail through your treatment with flying colors. For patients considering a transplant, the tools are provided to help you decide if one of these procedures is your best treatment option. (414) 870-4850
mytransplant@sbcglobal.net 

National Bone Marrow Transplant Link

Operates a 24–hour‚ toll–free number and provides peer support to bone marrow transplant (BMT) patients and their families. It serves as an information center for prospective BMT patients as well as a resource for health professionals.

(800) LINK-BMT (800-546-5268)
nbmtlink@aol.com

National Marrow Donor Program® (NMDP)

Funded by the Federal Government to improve the effectiveness of the search for bone marrow donors. It keeps a registry of potential bone marrow donors and provides free information on bone marrow transplantation. Help available in English, Spanish, Chinese, Japanese, Vietnamese, and Korean.

(800)MARROW2 or (800-627-7692)

Brain Tumors

American Brain Tumor Association
Offers free publications, educational programs, social service consultations by telephone, a mentorship program, support group lists, a resource list of physicians, a pen pal program and funds research.

(800) 866-2282
abta@aol.com

The Brain Tumor Society
Provides individualized patient/family information, publishes educational materials, sponsors professional and patient conferences, and funds research.

(800) 770-8287
info@tbts.org

The Guardian Brain Foundation 
The mission of The Guardian Brain Foundation is to help advance neuroscience research, provide support services and to improve quality of life for adults and children diagnosed with injuries and tumors of the brain.

(516) 679-5075
info@guardianbrain.com

National Brain Tumor Foundation (NBTF)

Provides patients and their families with information on how to cope with their brain tumors. Spanish language help available.

(800) 934-CURE (800-934-2873)
nbtf@braintumor.org

The Tug McGraw Foundation 
The Tug McGraw Foundation was established to raise funds to enhance the quality of life of children and adults with brain tumors and their families by stimulating and facilitating research that addresses the physical, social, emotional, cognitive, and spiritual impact of the disease.

Breast Cancer

About Breast Health
A resource for breast cancer patients or other concerned persons, this excellent site provides general information, an informative FAQ and a portal for people to contact physicians and support groups.

502-629-6950
info@AboutBreastHealth.com 

Firefly Sisterhood 

The mission of The Firefly Sisterhood is to foster one-to-one connections between women recently diagnosed with breast cancer and inspirational survivors. In reaching out to our communities, we’ve learned that when it comes to breast cancer: a) Emotional health and physical healing are linked b) Family and friend fatigue is real c) Connecting one-to-one with someone who has walked a similar path has a powerful effect.

Research by the American Cancer Society shows “treatment that deals with emotions and relationships (sometimes called psychosocial interventions) can help people with cancer feel more upbeat and have a better quality of life.” Strong personal relationships help reduce tension and anxiety in women with breast cancer, and may lower their risk of depression. To be matched with a guide, apply on the Firefly Sisterhood website.

National Breast Cancer Coalition (NBCC)
A grassroots organization dedicated to ending breast cancer through action and advocacy. NBCC works to increase federal funding for breast cancer research, collaborate with the scientific community to implement new models of research, improve access to high quality health care and expand the influence of breast cancer advocates in all aspects of the breast cancer decision-making process.

(800) 622-2838

Sisters Network, Inc.
Seeks to increase local and national attention to the impact that breast cancer has in the African-American community. All chapters are run by breast cancer survivors and receive volunteer assistance.

(866)781-1808
sisnet4@aol.com 

Susan G. Komen for the Cure 
A toll-free breast cancer helpline (1-800-I’M AWARE®) is answered by trained volunteers whose lives have been personally touched by breast cancer. Breast health and breast cancer materials are available. Also includes information on Komen Race for the Cure.

(877) GO KOMEN (1-877-465-6636)

Y-ME National Breast Cancer Organization, Inc. 
Y–ME serves women with breast cancer and their families through their national hotline (available 24 hours a day,) open-door groups‚ early detection workshops‚ and support programs. Spanish language help available.

(800) 221-2141 (English); (800) 986-9505 (Spanish)

Caregivers

Family Caregiver Alliance

A public voice for caregivers with pioneering programs in information, education, services, research and advocacy to support and sustain the important work of families nationwide caring for loved ones with chronic, disabling health conditions.

Coping with Cancer: For Caregivers, Family and Friends (from the National Cancer Institute)

Information to help caregivers cope while caring for a loved one with cancer, as well as help someone with cancer cope with the illness.

Children & Young Adults

American Childhood Cancer Organization (ACCO)
A nonprofit organization that provides information‚ peer support‚ and advocacy. A financial aid list has organizations to which eligible families may apply for assistance.

(855)858-2226

Cancer Kids
Cancer Kids is a web-based organization which began in 1997 with one simple goal to help children with cancer tell their stories to the world.

Children’s Brain Tumor Foundation
Founded in 1988 by dedicated parents, physicians and friends, their mission is to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors.

(866) 228-4673

Children’s Cancer Association
Founded more than 15 years ago, the Children’s Cancer Association brings JoyRx to seriously ill children and their families, in the hospital and at home. When families need support, CCA is there with award-winning programs and resources, available at no cost to those in need, in Oregon, Southwest Washington and across the nation.

Kids Cancer Connection
Kids Cancer Connection offers a variety of nationwide programs and services to children and their families to help them through the challenges of childhood cancer.

Kids Cancer Network
In 1992, young cancer survivor Kenon Neal founded Kids Cancer Network to provide “a dose of hopeTM” for kids and their families isolated by the rigors of childhood cancer treatment.

Kids Konnected
Provides friendship, education, and support to kids who have a parent with cancer.

(800) 899-2866
info@kidskonnected.org 

National Children’s Cancer Society
The mission of The National Children’s Cancer Society is to improve the quality of life for children with cancer and their families worldwide. They serve as a financial, emotional and educational resource for those in need at every stage of illness and recovery. In the United States, they ease the financial burdens that accompany major illness, give crucial support and address the challenges of survivorship. Abroad, they provide lifesaving pharmaceutical drugs and medical supplies to facilities that treat children with cancer.

Planet Cancer
Planet Cancer is a community of young adults with cancer. It’s a website to share insights, explore fears, and laugh with others who just plain get it. They don’t deny the dark side of illness and death here. But they also firmly believe that laughter and light can turn up in the strangest places.

(512) 481-9010

Ronald McDonald House
Offers programs to help children including refuge from the hospital, a “home-away-from-home” and “Family Rooms” within hospitals.

(630) 823-7048

Twin Cities location:
608 Ontario Street Southeast, Minneapolis, MN 55414
(612) 331-5752
www.rmhtwincities.org

StarBright

The STARBRIGHT Family Room is an online community that provides information and support to help parents care for their seriously ill child. There is a new edition each month featuring information from both caregivers and healthcare professionals. Topics include managing finances, knowing your rights in school and insurance systems, and communicating with doctors. There are also message boards where parents can share their experiences and gain support from each other.

(800) 315-2580

Survivor Alert 
SURVIVOR ALERT is part of ongoing efforts nationally to educate adolescent and young adult cancer survivors about research showing that an early history of cancer creates a need for lifelong follow-up care and motivate them to take charge of their health. This website provides information for survivors and health professionals, makes recommendations for action, and includes links to many useful resources.

937-767-1924
karenyd@donet.com

The Ulman Cancer Fund for Young Adults
Serves young adults affected by cancer worldwide, and offers support groups for them, their family and their friends.

(888) 393-FUND
info@ulmanfund.org

Colon Cancer

Colon Cancer Alliance
Deeply committed to peer support – in the form of a “buddies program” the Alliance makes it possible for patients to talk one-to-one with survivors and caregivers.

(877) 422-2030
info@ccalliance.org 

National Colorectal Cancer Research Alliance 
Co-founded by Katie Couric and Lily Tartikoff, the NCCRA is dedicated to the eradication of colon cancer by harnessing the power of celebrity to promote education, fundraising, research, and early medical screening. The site offers information on screening tests, a health checklist, a factsheet, and information on clinical research.

(800) 872-3000

The Susan Cohan Kasdas Colon Cancer Foundation
The Susan Cohan Kasdas Colon Cancer Foundation hopes to dramatically reduce the death rate of colon cancer throughout the United States and across the world. The foundations aims are to educate everyone about screenings and ensure that no individual is unable to access proper screening, providing psychological support for those with the disease and aiding clinical trials and cutting-edge research.

(410) 244-1778
info@coloncancerfoundation.org

General Cancer Information & Support

American Association for Cancer Research (AACR)
AACR is the leading source of information about advances in the causes, diagnosis, treatment and prevention of cancer. By accelerating the growth and spread of new knowledge about cancer, AACR is on the front lines of the quest for prevention and cure.

1-866-423-3965

aacr@aacr.org 

American Cancer Society (ACS) 
A voluntary organization that offers a variety of services to patients and their families. The ACS also supports research, provides printed materials, and conducts educational programs. Spanish language help available.

(800) ACS-2345 (800-227-2345)

American Institute for Cancer Research (AICR)

Provides information about cancer prevention, particularly through diet and nutrition. They offer a toll-free nutrition hotline, pen pal support network, and funding of research grants. Spanish language publications available.

(800) 843-8114
aicrweb@aicr.org

American Society of Clinical Oncology (ASCO)
Contains more than 40,000 pages of information, including: cancer resources on the Internet, finding an oncologist, and up-to-date information about cancer policy issues.

(703) 299-0150
Asco@asco.org

Cancer Care, Inc. 
A national nonprofit agency that offers free support, information, financial assistance, and practical help to people with cancer and their loved ones. Services are available in person, over the phone, and through the agency’s website. Spanish language help available.

(800) 813-HOPE (800-813-4673)
info@cancercare.org 

Cancer Consultants
Cancer Consultants is dedicated to providing comprehensive prevention and treatment information, up-to-date news, and clinical trials listings for cancer patients and their families.

(208)727-6880
ldubose@cancerconsultants.com

Cancer Hope Network
The Cancer Hope Network provides individual support to cancer patients and their families by matching them with trained volunteers who have undergone and recovered from a similar cancer experience.

877-HOPENET (877-467-3638)

Cancervive, Inc.

For the past 17 years, Cancervive has provided counseling, education and advocacy to cancer patients, family members and health professionals. Our patient education materials (books, documentary videos and games) are being used and valued in every major cancer center.

(800) 4-TO-CURE
cancervivr@aol.com

CanSurmount 
Canadian organization affiliated with the Canadian Cancer Society. Offers education and support for patients and family members. Attempts to match volunteers who have survived cancer with patients who are in the hospital. Services provided in English and French.
In Canada, call: 1-888-939-3333; In the US call: (800) ACS-2345

Chemocare.com
Scott Hamilton’s website is designed to provide the latest information about chemotherapy to patients and their families, caregivers and friends.

Coalition of National Cancer Cooperative Groups, Inc.

Provides basic information about cancer clinical trials, a list of available trials offered by seven cooperative groups, and helpful links to patient advocate groups.

(877) 520-4457

Corporate Angel Network, Inc. (CAN)
CAN finds free air transportation (on corporate planes) for cancer patients who need medical treatment. Patients must be ambulatory.

(866) 328-1313
info@corpangelnetwork.org

Imerman Angels
Talk to someone who has been there! Their mission is to provide personalized connections that create 1-on-1 support among cancer fighters, survivors and caregivers. If you are a survivor or a caregiver, please consider becoming a mentor as well! Service is completely free.

Livestrong: Lance Armstrong Foundation
The Foundation focuses its activities in the following areas: survivor resources and support, survivorship programs, national advocacy initiatives, scientific and clinical research grants.

(512) 236-8820

National Cancer Institute
Provides accurate, up-to-date information on many types of cancer, information on clinical trials, resources for people dealing with cancer, and information for researchers and health professionals. Help also available for the deaf and in Spanish.

(800) 4-CANCER (800-422-6237)

National Cancer Institute: Clinical Trials at NIH 
In-depth information on clinical trials

1-888-NCI-1937
ncicssc@mail.nih.gov 

National Cancer Survivors Day Foundation (NCSD)
National Cancer Survivors Day is the world’s largest cancer survivor event and is celebrated on the first Sunday in June of each year in more than 700 communities throughout North America and elsewhere. A free celebration planning kit is available from the foundation.

(615) 794-3006
ncsd@aol.com

National Coalition for Cancer Survivorship (NCCS)
NCCS is a network of groups and individuals that offer support to cancer survivors and their loved ones. It provides information and resources on cancer support‚ advocacy‚ and quality-of-life issues. A section of the NCCS website and a limited selection of publications are available in Spanish.

(877) 622-7937

National Lymphedema Network, Inc.
Cancer organization focusing on Lymphedema. The network publishes a quarterly newsletter, provides referrals, presents a biennial national conference and offers educational materials for purchase.

(800) 541-3259

The Mautner Project for Lesbians with Cancer

Provides support, education, information and advocacy for health issues relating to lesbians with cancer and their families. Help also available in Spanish.

(202) 332-5536
mautner@mautnerproject.org 

OncoLink
Affiliated with the University of Pennsylvania Cancer Center. A comprehensive website that provides information about specific types of cancer, updates on cancer treatments and news about research advances.

(215) 349-5445

People Living With Cancer
People Living With Cancer is the patient information website of the American Society of Clinical Oncology (ASCO). PLWC provides timely, oncologist-approved information to help patients and families make informed health-care decisions.

R. A. Bloch Cancer Foundation, Inc.
The foundation matches newly diagnosed cancer patients with trained‚ home-based volunteers who have been treated for the same type of cancer. Informational materials and a list of institutions that offer second opinions also available.

800-433-0464

Vital Options International TeleSupport Cancer Network
An organization that facilitates a weekly syndicated call-in cancer talk show linking callers with other patients, long-term survivors, family members, physicians, researchers and therapists. Offers services in English and French.

(800) 477-7666
info@vitaloptions.org

The Wellness Community
Provides free psychological and emotional support to cancer patients and their families. They offer support groups on stress reduction and cancer education workshops‚ nutrition guidance‚ exercise sessions‚ and social events.

(888) 793-WELL (888-793-9355)
help@wellness-community.org 

GIST (Gastrointestinal Stromal Tumor)

GIST Support International
On this site you will find people from around the world who are dealing with GIST, both the experienced and inexperienced, patients and caregivers, nonprofessionals and professionals. Here you will find support, contacts and information for managing life with GIST Cancer.

gsi@gistsupport.org 

Gynecological Cancer

The Foundation for Women’s Cancer (formerly Gynecologic Cancer Foundation)
GCF is designed to increase public awareness of ways to prevent, detect and treat gynecological cancers and support innovative research. (800) 444-4441

gcf@sba.com

Hospice

Hospice Education Institute
Includes programs such as HospiceLink, which helps patients and their families find support services in their communities. They offer information about hospice and palliative care and can refer cancer patients and their families to local hospice and palliative care programs.

(800) 331-1620

National Hospice and Palliative Care Organization (NHPCO)
The NHPCO is an association of programs that provide hospice and palliative care. Help in Spanish is also available.

(800) 658-8898

Kidney Cancer

Kidney Cancer Association
Supports research‚ offers printed materials about the diagnosis and treatment of kidney cancer‚ sponsors support groups‚ and provides physician referral information.

(800) 850-9132
office@kidneycancerassociation.org

Liver Cancer

About Liver Tumors

A resource for liver patients and concerned persons. This website is an excellent resource that includes FAQ’s, definitions, as well as a portal for people to contact physicians and support groups.

(502) 629-3380

info@AboutLiverTumors.com

 

American Liver Foundation

Support and referrals for people with liver cancer and liver diseases.

(800) GO-LIVER
info@liverfoundation.org

Lung Cancer

American Lung Association
Dedicated to preventing lung disease and promoting lung health. Services also available in Spanish.

(212) 315-8700
info@lungusa.org

Lung Cancer Alliance
ALCASE offers programs designed to help improved the quality of life of people with lung cancer and their families. Programs include education about the disease, psychosocial support, and advocacy about issues that concern lung cancer survivors.

(800) 298-2436
info@alcase.org

Mesothelioma

Mesothelioma Information and Resource Group
The Mesothelioma Information and Resource Group [MIRG] is an organization created to assist patients, family, friends and loved ones in learning about mesothelioma and other asbestos-related injuries. It is the aim of MIRG to provide information about the disease, its causes, its treatment and its personal and legal impact.

1-888-802-6376
info@mirg.org

Myeloma, Leukemia & Lymphoma

International Myeloma Foundation (IMF)

Supports education, treatment, and research for multiple myeloma. They provide a toll-free hotline, seminars, and educational materials for patients and their families. Assistance is provided in many languages.

(800) 452-CURE (800-452-2873)
TheIMF@myeloma.org

The Leukemia and Lymphoma Society 
The goal of the society is to find cures for leukemia, lymphoma, Hodgkin’s disease, and multiple myeloma and to improve the quality of life of patients and their families. The society provides patient financial aid for specified treatment expenses and transportation, family support groups, First Connection (a professionally supervised peer support program), referrals and school re-entry materials. Help is also available in Spanish, French, Portuguese, and Japanese.

(800) 955-4572

Lymphatic Research Foundation
The Lymphatic Research Foundation’s mission is to advance research of the lymphatic system and to find the cause of and cure for lymphatic diseases, lymphedema, and related disorders.

(516) 625-9675
lrf@lymphaticresearch.org 

Lymphoma Research Foundation (LRF)
LRF funds research and provides educational information on lymphoma. They offer a helpline for general information on lymphoma, as well as referrals to other resources, oncologists, clinical trials and support groups. A buddy program is available to match newly diagnosed patients with other lymphoma patients who have coped with the disease.

(800) 500-9976

The Multiple Myeloma Research Foundation (MMRF)
Supports research grants and professional and patient symposia on multiple myeloma and related blood cancers. MMRF publishes a quarterly newsletter, and provides referrals and information packets free of charge to patients and family members.

(203) 972-1250
themmrf@themmrf.org

Oral, Head, & Neck Cancer

International Association of Laryngectomees (IAL)

An association of over 230 laryngectomee clubs. Clubs provide pre- and post-operation visits to laryngee cancer patients and continuing support education for laryngectomees and families.

(866) IAL-FORU (866-425-3678)
IAL@larynxlink.com 

Mouth Cancer Foundation
A not-for-profit Internet portal that aims to help patients and health professionals find free information on mouth, head & neck cancers easily. It provides direct links to the relevant sections of existing cancer websites and includes patient stories as well as an active message board, which acts as an easily accessible online support group. The website includes first-hand patient accounts of their experiences and has sections on Treatment, Complications, Cheerful Help, Spiritual Help, HPV Risks, Tobacco Risks, etc.

+44 0845 46 47
info@mouthcancerfoundation.org

Support for People with Oral and Head and Neck Cancers, Inc. (SPOHNC)
Offers a program of support and information addressing the emotional, psychological and humanistic needs of oral and head and neck cancer patients.

(800) 377-0928
info@spohnc.org

Ovarian Cancer

CONVERSATIONS: The International Ovarian Cancer Connection
Publisher of CONVERSATIONS! The International Newsletter for Those Fighting Ovarian Cancer, a free monthly newsletter providing hope, humor, support and information about treatment options and coping tips. Survivor-to-fighter matching service available.

(806) 355-2565

National Ovarian Cancer Coalition (NOCC)
NOCC raises awareness about ovarian cancer and promotes education about the disease. They also offer support groups, a database of gynecologic oncologists searchable by state, and educational materials.

(888) OVARIAN (888-682-7426)

Ovarian Cancer National Alliance (OCNA)
Works to increase public and professional understanding of ovarian cancer and to advocate for research. The Alliance distributes materials and sponsors an annual advocacy conference for survivors and families.

(202) 331-1332
ocna@ovariancancer.org

The Ovarian Cancer Research Fund (OCRF)
Dedicated to advancing research by underwriting investigations to find techniques for early detection and to aid in the development of new therapists. Raises awareness through educational outreach programs, awareness projects, including videos and resource materials.

(800) 873-9569
info@ocrf.org

Pancreatic Cancer

The Lustgarten Foundation for Pancreatic Cancer

516-803-2308
lsasso@cablevision.com 

Pancreatic Cancer Action Network (PanCAN)
PanCAN, a national nonprofit advocacy organization, works to focus national attention on the need to find a cure for pancreatic cancer by providing advocacy, awareness and education to patients and professionals.

(877) 2-PANCAN (877-272-6226)
info@pancan.org 

Patient Advocacy

Patient Advocate Foundation (PAF)
The PAF provides education‚ legal counseling‚ and referrals to cancer patients and survivors concerning managed care‚ insurance‚ financial issues‚ job discrimination‚ and debt crisis matters.

(800) 532-5274
help@patientadvocate.org 

Prostate Cancer

Men’s Cancer Resource Group
A support network that runs a 24-hour information line serving prostate cancer survivors and concerned professionals.
(800) 227-2345

National Prostate Cancer Coalition
A grassroots advocacy organization seeking to increase prostate cancer awareness, enhance outreach and advocate for research fund and better detection strategies.
(202) 463-9455
info@pcacoalition.org

US TOO! International, Inc.
A prostate cancer support group organization. Goals of US TOO! are to educate men newly diagnosed with prostate cancer, offer support groups, and provide the latest information about treatment for this disease.

(800) 80-US TOO (800-808-7866)

dorothy@ustoo.com

Skin Cancer

About Melanoma
A resource for melanoma patients and other concerned persons, this site is a definitive resource, providing in-depth definitions, an extensive FAQ and a portal through which to contact physicians and experts.

502-629-3380
info@AboutMelanoma.com

Melanoma International Foundation
The Melanoma International Foundation was established by people genuinely dedicated to battling melanoma on all fronts. Each board member has experienced melanoma firsthand: either from being a survivor or losing a loved one to the disease. The foundation is on the cutting edge of creating and supporting the most effective programs for the prevention, early detection, and treatment of melanoma.

866-463-6663 or 610-942-3432
info@melanomaintl.org

The Skin Cancer Foundation
Works to increase public awareness of the importance of taking protective measures against the damaging rays of the sun and teach people how to recognize early signs of skin cancer. They conduct public and medical education programs to help reduce skin cancer.

(800) SKIN-490 (800-754-6490)
info@skincancer.org

Testicular Cancer

The Testicular Cancer Resource Center
A website devoted to raising public awareness and educating patients about diagnosis and treatment options. Features self-exam instructions, dictionary, e-mail support and questions to ask your doctor.

dougbank@alum.mit.edu

Thymic Cancer

Foundation for Thymic Cancer Research

Offers information on research, clinical trials, patient stories and a provider database.

info@thymic.org

Thyroid Cancer

ThyCa: Thyroid Cancer Survivors Association, Inc.
A network of services that link thyroid cancer survivors and health care professionals around the world, the website is maintained by thyroid cancer survivors.

(877) 588-7904
thyca@thyca.org

Other Resources

CarePages
CarePages are patient websites that deliver emotional support to patients and families by making it easy for them to stay in touch during a hospital stay or any time when care giving is needed.

773.348.0720
support@carepages.com

Sarcoma Alliance
Strives to improve the lives of Sarcoma patients through guidance, education support.

415-381-7236
info@sarcomaalliance.org 

Shop Well With You
Shop Well with You is a 501(c) 3 not-for-profit organization that helps women with a history of cancer improve their quality of life by using clothing as a creative means towards wellness.

(800) 799-6790
info@shopwellwithyou.org